It is SO frustrating - my mother, sister and I all have CFS and Fibro. (The symptoms overlap a lot.) It took me a lot of pain and expense to finally get a diagnosis - and thus treatment - Let me tell you, a lot of doctors need to suddenly have a very bad problem that totally ruins their life that NO one believes in, lol.
Yet, when the studies are done, time and time again they are finding central nervous system changes and genetic links.
Besides a LOT of pain, and a lot of days I can barely stay awake for more than a few hours, the thing that has really been awful for me is the incredible brain fog.
Yet they give this really debilitating disease a totally silly name - Chronic Fatigue Syndrome - and suddenly everyone that you know claims to have it. That's one of the reasons that they are considering changing the name officially to myalgic encephalomyelitis.
Perhaps then, and with more studies, the disease could finally be recognized by all these old docs and half baked GPs running around.
"UNDER the microscope, it could not have been clearer. Sophia Mirza's brain and spinal fluid showed indisputable evidence of inflammation and cell death.
The discovery, by the neurologist Abhijit Chaudhuri and a neuropathologist colleague, marked the first time a serious abnormality confined to the central nervous system had been identified at the post-mortem examination of a patient whose principal diagnosis was chronic fatigue syndrome."
Victims Give Clues to the Answers